Why a Concierge Independent Patient Advocate Is the Right Choice

When health gets complicated, families quickly discover that navigating the system is overwhelming. Between coordinating specialists, chasing insurance approvals, reconciling medications, and planning for work or school, the need for guidance is undeniable. But here’s the question: should you rely on the care coordination services that Medicare reimburses—or hire your own independent patient advocate?

The short answer: If you want unbiased, comprehensive, and personalized support, an independent advocate is the clear choice.

What Medicare Pays For

Medicare has recognized the importance of care coordination and offers several billing codes to reimburse physicians and clinics for limited services:

  • Chronic Care Management (CCM): For patients with two or more chronic conditions; typically reimburses for 20–30 minutes of staff time per month.
  • Principal Care Management (PCM): For patients with a single serious condition; also time-limited and bound by documentation rules.
  • Transitional Care Management (TCM): A one-time service after hospital discharge, requiring a follow-up visit within 7–14 days.
  • Community Health Integration (CHI) & Principal Illness Navigation (PIN): New in 2024, designed to help patients with social determinants of health (housing, food, transportation) or complex illness navigation.

These services matter. They give clinics tools to support patients—but they are constrained by billing cycles, documentation requirements, and narrow definitions of what counts as “coordination.”

What the New 2024 Codes Do Not Cover

The 2024 Medicare expansions are important steps forward, but their scope is still narrow. Here’s what remains outside coverage:

  • Insurance appeals and negotiations: Clinics can document a need, but they cannot spend hours compiling medical records, drafting appeal letters, or arguing denials with insurers.
  • Employer return-to-work planning: Medicare codes don’t cover helping patients negotiate with HR or adjust job duties.
  • School IEP/education advocacy: Medical practices cannot bill for attending school meetings or advocating for classroom accommodations.
  • Deep cross-state coordination: Codes are tied to the billing clinic. National research, out-of-state referrals, and travel planning are not covered.
  • Comprehensive caregiver support: Limited to structured “training” sessions—ongoing emotional coaching, home system organization, or respite planning are not reimbursable.
  • Hands-on social services advocacy: Medicare pays for screening and referrals, but not for following up, negotiating with agencies, or ensuring services are actually delivered.

Real-World Examples: The Gaps in Action

  1. The Insurance Denial Appeal
  • Medicare Coverage: Clinic staff can document a barrier or make a referral.
  • Independent Advocate: Builds a full case, gathers evidence, writes appeal letters, and negotiates directly with insurers.
  1. The Employer Return-to-Work Dilemma
  • Medicare Coverage: No billing path for employer communication or job accommodation planning.
  • Independent Advocate: Reviews job descriptions, aligns them with medical restrictions, and negotiates accommodations with HR.
  1. The School IEP Meeting
  • Medicare Coverage: Referrals only; educational advocacy is outside scope.
  • Independent Advocate: Attends IEP meetings, ensures medical needs are addressed, and secures proper services.
  1. Coordinating Out-of-State Specialist Care
  • Medicare Coverage: Limited to local practice-based coordination.
  • Independent Advocate: Researches specialists nationally, arranges logistics, and ensures seamless record transfer.
  1. Caregiver Support Beyond “Training”
  • Medicare Coverage: Training codes exist, but ongoing problem-solving and emotional support are excluded.
  • Independent Advocate: Coaches caregivers, organizes home care systems, and mobilizes family members to share responsibilities.
  1. Housing and Social Services Advocacy
  • Medicare Coverage: Providers can bill for screening and referral.
  • Independent Advocate: Makes the calls, negotiates with agencies, and ensures real-world solutions are implemented.

 

Why It’s Not the Same

  • Medicare codes are limited by time. Most cap at 30 minutes per month. Real-world challenges—like disputing a denial or arranging home care—can take hours.
  • They exist inside the medical system. Coordination is tied to your clinic’s staff and priorities. Insurance appeals, employer planning, or school advocacy? Not covered.
  • They shift with policy updates. Programs expand or contract based on Medicare rule changes. Your support isn’t guaranteed long term.

By contrast, a concierge independent patient advocate:

  • Works only for you—with no financial ties to insurers, providers, or facilities.
  • Provides unlimited, as-needed time.
  • Coordinates across systems: healthcare, insurance, legal, school, and employment.
  • Offers continuity over months or years, not just billing cycles.
  • Focuses on your goals and values, not clinic metrics.

 

The Cost Conversation

Independent advocacy is an out-of-pocket investment. Medicare reimburses roughly $60–$120/month for routine management and $200–$270 for transitional episodes. That budget buys limited clinic staff time—not the comprehensive, hands-on advocacy that complex situations often require.

By contrast, a concierge advocate helps prevent costly delays, reduces stress, and provides peace of mind. For families who can afford it, the return on investment is measured in time saved, stress avoided, and better outcomes achieved.

 

Bottom Line

Medicare pays for slices of coordination. A concierge patient advocate gives you a dedicated strategist for your entire healthcare journey.

If you can afford it, investing in an independent advocate means peace of mind, stronger outcomes, and a trusted partner whose only agenda is yours.

LORI IS EXTREMELY TALENTED!

What a great use of Lori’s talents!

I worked with Lori for several years during my career as an orthopedic surgeon. I know her to be not only compassionate and understanding but also a tireless advocate for what is right.

In difficult situations she was unwavering in her quest to enable me to provide the best possible care for my patients. She knows the system and how to work through it (and around it whenever necessary

LORI JUMPED RIGHT IN

If you are in need of a patient advocate, I would highly recommend Lori Schellenberg. She is extremely knowledgeable, effective, and professional. Knows when to be strong and forceful yet loving and caring with your loved one and your family. I was concerned about an elderly family member who had several severe falls, was forgetting to take medication, not eating healthy and not keeping up with housekeeping yet insistent she was fine and staying in her home. Even though Lori lived out of state she made phone calls on our behalf, made several recommendations to help us provide what our loved one needed and was an intermediary when it was necessary. Lori’s knowledge of geriatrics, continuous care/assisted living facilities, the health care system, long term care insurance and hospice is invaluable. She helped us put together a plan that provided the best and continuous care necessary for our loved one and our family. We are extremely thankful for her help and look forward to continuing to work with her as our loved one moves through the next phases of her life’s journey, thus enabling us to create loving memories.

LORI JUMPED RIGHT IN

My husband underwent nasal surgery 6 months ago, after he had a negative sleep study test and was referred to an ENT doctor due to continued fatigue and snoring.

Unfortunately, he developed two different serious infections, and we were concerned about his ongoing treatment with the ENT. In fact, we were very anxious because he wasn’t getting better but the surgeon was not clear with us as to what to do next.

When describing what was going on, Lori jumped right in, when she found out my husband was actually at the surgeon’s office at that time, and still did not understand the situation. She recommended that my husband ask to have the surgeon come back into the room, and to call her so that she could speak to the surgeon with my husband in the room. Lori was very professional and knowledgeable in her approach with his surgeon. She established a treatment plan, in a way that my husband could understand, and why this was the plan. She also discussed the “what ifs” the current treatment plan did not work. He ordered further tests to be completed prior to his next appointment, if he did not improve.

She followed up with my husband and I to make sure we understood the plan.

By advocating for my husband, Lori relieved a lot of anxiety and stress that this current medical concern was causing, and they felt more confident in the surgeon’s care.

We highly recommend Lori and Stepping Stone Advocacy Services, if you are experiencing a medical condition, and don’t know where to turn for answers. She is experienced and professional, yet able to discuss medical terms in a way that we understood.